WORLD HEMOPHILIA DAY

It is a very important event in our life. We celebrated it in Bucureşti together with people coming from all over Romania. This day it means a lot of happyness, because we are together, but also mourning because 7 people from our community dyed last year because of bleeding.

The perspectives are not good: the factor supply will go down from 0.5 I.U./capita to 0.3 I.U./capita! And we know how much was the 0.5 I.U./capita: almost nothing!
I think we have to change our strategy. That's why I was very happy that the Asociaţia Naţională a Hemofilicilor din România and the Asociaţia Română de Hemofilie, the two sister associations, were celebrating together.
I hope that there will be further collaborations too, because

TOGETHER, WE CARE!

The celebration was organized on 14.04.2009.

HEMOPHILIA CONQUERS MT. PIATRA CRAIULUI

On Sunday (12.04.09) I decided with my friend, Varga Gábor, to visit Prăpăstiile Zărneştului which is a canyon in Mt. Piatra Craiului. You can go very close to the canyon by car. So It wasn’t a problem for Gábor to visit it even if he suffers of severe hemophilia. We enjoyed the trip very much, we did a lot of photos, but when reach the end of the canyon -surprise!- Gábor starts to climb a path which goes to Curmatura Cabin. The Mt. Piatra Craiului is not recommended for ordinary men, but Gábor isn't’ an ordinary man either. It’s true: we stopped a lot for rest, and we reached only the cabin (1470m), but I think we won!
Using Jack Finn’s saying:’’bloody can do it’’!

Photos: http://picasaweb.google.hu/kkisslaci/Kiralyko12042009#
More info about Mt. Piatra Craiului:
http://www.cabana-curmatura.ro/
http://www.pcrai.ro/engleza/parcul_istoric.html